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The original was posted on /r/cfs by /u/Croque-Madame7 on 2024-11-09 11:58:25+00:00.

For those with severe ME/CFS:

• How many hours of care do you receive each week?

• How do you deal with people and noise?

• How much are you able to talk each day?

• Does anyone use communication cards or other tools to interact with caregivers?