This is an automated archive made by the Lemmit Bot.

The original was posted on /r/cfs by /u/restlesshearty on 2024-11-09 21:07:11+00:00.

CFS since 2017 and just losing hope over here.

My partner of 8 years told me he’s losing hope and feeling like being in constant survival mode to be able to live with me and care for me. He doesn’t want to admit but he feels unable to keep doing this. This ofcourse is making me very sad and it feels hard not to blame myself/my illness and just dissapear more into a voidless pit.

I’m noticing I’m hoping more for a cure, especially with long covid research in the mix now but that also seems like a far away dream. I was excited for the BC007 trial results talk but that talk has been cancelled. I’m 29 years old now and my whole twenties have been about this damn disease. Always cautious of overdoing it. Literally weighing everything if it’s worth it in terms of energy expenditure and my own well being.

I wanted to start a family and live a healthy life but that’s nowhere to be found and I dont know if I can handle ten more years of this.

What’s something that makes you feel better or give you hope when you feel the despair and remorse over all you lost?