Every minute that I’m not at work I’m dedicating to making sure I’m likely to be well enough for work tomorrow.
I don’t do anything after work without asking “how will this impact my health tomorrow?” and that includes things like not being able to sweep my own floor because I know I need to sweep at work and the nerve damage in my arms won’t let me sweep twice in one day without keeping me up all night in pain, and if I don’t get enough sleep, I’ll get a migraine and won’t be able to physically see anything.
Most of my days off are spent in agony trying to restore myself and desperately trying to reset my house and home life so I can keep up with work, without overdoing it on Sunday and making myself sick for Monday.
So yeah, on the one day a month where I wake up for work and I don’t throw up or almost shit myself, and my heart rate is doing what it’s supposed to do, and I can see and hear and feel my feet… The temptation to “call in healthy”, so I can actually have a day off to enjoy myself for the first time in over a month is really hard to ignore.
I actually did that this week because Wednesday was my birthday, I went to work, it was a “bad workable day” (vs a “good workable day” or a “bad unworkable day”) and Thursday I woke up feeling really good, I only had a 2 hour shift and it was just admin so I took my first sick day in 6 months and used it to do all my linens and towel laundry. It felt like a proper day off because I was healthy enough to get stuff done for myself, without being in pain or having to stop to run to the bathroom or let my heart calm down, or give up on folding because I can’t feel my arms.
I can’t do that every time I want or even need to though. My bank account is really good at forcing me to go to work, healthy, half dead, or heaving. Chronic illness is expensive, and some days trying to keep up with work feels like it costs my health more than not working. but sadly not working is not an option for me, because I’m capable of work, so I must. (and continue to push my gov for universal basic income)
For context as to how working while disabled messes you up. I got hit by a truck on the way to work last year, I got to the office and used their first aid kit to patch myself up. Booked a doctors appointment, told my boss I’d be leaving early, then kept working until my appointment.
My boss was fine with this, and then someone on reddit posted a photo of the crash and my boss saw, they realised when I said “I was hit by a truck” what I meant was “I was hit by a truck”
When asked how I was feeling, and reporting “no different to usual” my boss sent me to the ER because they thought I had a concussion and was acting confused. ER checked me out, dislocated shoulder and wrist, soft tissue damage here and there, but otherwise nothing major or serious or nothing I don’t already deal with on a daily basis. I went back to finish my shift and my boss asked what I was doing working after I’d been hit by a truck.
I feel exactly the same level of pain today as I do every other day. If I take today off because this level of pain is apparently unworkable, it’s a slippery slope, eventually I’m going to have to come back to work despite being in this exact same level of pain. This is my baseline, now I can truly compare it to being hit by a truck.
I used to be on a pension, I wanted to work because I wanted purpose in the neo-liberal hell scape of my society. but my mental health was too shot because of this deep rooted idea that I deserved rest just for being in any level of pain that was out of the ordinary, and subconsciously I would talk myself out of doing anything because I deeply believed I shouldn’t have to.
But I don’t have that luxury, my ordinary will always be “hit by a truck” level, so right now I either learn how to consistently work through it, or drop dead broke and homeless.
As someone chronically Ill, I feel this so hard.
Every minute that I’m not at work I’m dedicating to making sure I’m likely to be well enough for work tomorrow.
I don’t do anything after work without asking “how will this impact my health tomorrow?” and that includes things like not being able to sweep my own floor because I know I need to sweep at work and the nerve damage in my arms won’t let me sweep twice in one day without keeping me up all night in pain, and if I don’t get enough sleep, I’ll get a migraine and won’t be able to physically see anything.
Most of my days off are spent in agony trying to restore myself and desperately trying to reset my house and home life so I can keep up with work, without overdoing it on Sunday and making myself sick for Monday.
So yeah, on the one day a month where I wake up for work and I don’t throw up or almost shit myself, and my heart rate is doing what it’s supposed to do, and I can see and hear and feel my feet… The temptation to “call in healthy”, so I can actually have a day off to enjoy myself for the first time in over a month is really hard to ignore.
I actually did that this week because Wednesday was my birthday, I went to work, it was a “bad workable day” (vs a “good workable day” or a “bad unworkable day”) and Thursday I woke up feeling really good, I only had a 2 hour shift and it was just admin so I took my first sick day in 6 months and used it to do all my linens and towel laundry. It felt like a proper day off because I was healthy enough to get stuff done for myself, without being in pain or having to stop to run to the bathroom or let my heart calm down, or give up on folding because I can’t feel my arms.
I can’t do that every time I want or even need to though. My bank account is really good at forcing me to go to work, healthy, half dead, or heaving. Chronic illness is expensive, and some days trying to keep up with work feels like it costs my health more than not working. but sadly not working is not an option for me, because I’m capable of work, so I must. (and continue to push my gov for universal basic income)
For context as to how working while disabled messes you up. I got hit by a truck on the way to work last year, I got to the office and used their first aid kit to patch myself up. Booked a doctors appointment, told my boss I’d be leaving early, then kept working until my appointment.
My boss was fine with this, and then someone on reddit posted a photo of the crash and my boss saw, they realised when I said “I was hit by a truck” what I meant was “I was hit by a truck”
When asked how I was feeling, and reporting “no different to usual” my boss sent me to the ER because they thought I had a concussion and was acting confused. ER checked me out, dislocated shoulder and wrist, soft tissue damage here and there, but otherwise nothing major or serious or nothing I don’t already deal with on a daily basis. I went back to finish my shift and my boss asked what I was doing working after I’d been hit by a truck.
I feel exactly the same level of pain today as I do every other day. If I take today off because this level of pain is apparently unworkable, it’s a slippery slope, eventually I’m going to have to come back to work despite being in this exact same level of pain. This is my baseline, now I can truly compare it to being hit by a truck.
I used to be on a pension, I wanted to work because I wanted purpose in the neo-liberal hell scape of my society. but my mental health was too shot because of this deep rooted idea that I deserved rest just for being in any level of pain that was out of the ordinary, and subconsciously I would talk myself out of doing anything because I deeply believed I shouldn’t have to.
But I don’t have that luxury, my ordinary will always be “hit by a truck” level, so right now I either learn how to consistently work through it, or drop dead broke and homeless.