[Wong] founded the Disability Visibility Project in 2014, initially as an oral history project designed to collect the stories of disabled people. She has shared these histories in two books, Disability Visibility and Disability Intimacy, and is working on a third.

Wong writes unflinchingly about how US policies and systems fail disabled people, queer people, immigrants and people of color. She writes about her own story – about growing up with a neuromuscular disease, coming into herself and her activism, and a series of medical crises in 2021 that triggered her transformation into a self-described “disabled cyborg” who now relies on a range of technology to stay alive, and a text-to-speech device to communicate.

Over the course of a month, I corresponded with Wong about her life of activism, and her visions for surviving and fighting for human rights in the years to come.