First Post

RockyMountainJoeM to

SarcoidosisEnglish · 13 days ago

First post to get community started. I was diagnosed with sarcoidosis recently with likely with cardiac involvement. I’m fairly new in the diagnosis and navigating life with it. I found the Reddit community helpful and wanted to create a similar one here in the fediverse. Please post with your experience, questions, and suggestions!

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Sarcoidosis

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Welcome to Sarcoidosis on leminal.space, a space for individuals navigating life with sarcoidosis. Whether you’re newly diagnosed, a long-time warrior, or supporting a loved one, this community is here to share knowledge, experiences, and encouragement.

Our focus is on mutual support, evidence-based information, and holistic well-being—including medical treatment, lifestyle adjustments, and emotional health. Let’s learn from each other and build a supportive, understanding space.

Community Guidelines

Be Respectful & Supportive: Everyone’s journey is unique. Offer encouragement and constructive advice. No personal attacks, harassment, or discrimination.
Medical Advice Disclaimer: This is a support community, not a substitute for medical advice. Always consult a healthcare professional before making changes to your treatment.
Evidence-Based Discussions: Feel free to share personal experiences, but when discussing treatments, research, or claims, back them up with reputable sources when possible.
No Misinformation or Spam: Avoid promoting unproven treatments, miracle cures, or unverified medical claims. No advertisements or self-promotion without prior approval.
Privacy & Confidentiality: Respect the privacy of members. Do not share personal health information of others without consent.
Trigger Warnings & Sensitive Topics: If posting about difficult experiences (e.g., hospitalizations, severe symptoms, or loss), consider adding a trigger warning.
Stay On-Topic: Keep discussions relevant to sarcoidosis, treatments, symptom management, lifestyle, and related topics.
Moderator Discretion: Moderators reserve the right to remove content that violates guidelines or disrupts the community.

Visibility: Public

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