Oh no I got to be real special. It was leiomyosarcoma. I was a paramedic for years fell down some stairs once with a patient when I was younger. Had some torn muscles and all that. Went on with life for 30 years with “a sore back” all the time. Oh well. Young and dumb right. One day I kicked a kitchen chair leg passing by. Turns out I couldn’t feel my foot…or the the other one either. Within 6 months I was paralyzed chest down. They chopped it out and I got major radiation treatments that will probably give me cancer before I die. Fun times.
For future reference how does one go from tinnitus to tumors? What’s the testing. I know someone with severe tinnitus they say is mind numbing and makes them feel insane its so bad.
So, I am happy to at least give you my story. I’m an old school metal head. I’ve been to a lot of rock shows. A lot. So when I started having ringing in my right ear I was just kind of like…no shit, don’t color me shocked. It wasn’t extreme, but it was there and it was annoying and it was weird. Almost sometimes like an old timey radio between channels. Anyways, I ignored it forever as part of my own bad life choices. But I have this other annoying thing called a wife, and we are blessed with decent health care so I eventually went to the doc. He looked in there and said he didn’t see shit. But out of abundance of caution he sent me to a fancy ENT. Took a month to get an appointment, and he didn’t see shit either, but out of another abundance of caution he sent me for a noodle MRI. Got a call from his office the next day that I needed to come in as soon as possible. That’s when you know you’re fucked. So anyways, my tinnitus was caused by a tumor wrapped around my auditory nerve. This was caused by a super rare genetic disease called neurofibromas type 2. So basically I am a mutie whose super power is to grow tumors on my cranial nerves. Sweet. There is nothing w cure. Treatment is currently radiation or surgery. I’ve had one surgery which took that tumor but also my hearing on that side. I have another surgery next month for a tumor in my fucking face, which grew off the nerve that runs through there. I can actually feel that fucker with my figer, and if I mess with it my ear goes numb. So long story short kids. 1) wear hearing protection at shows 2) get weird medical shit checked out. If you’d like to learn more about neurofibromatosis please visit www.ctf.org
Holy shit. That’s terrible you lost your hearing on one side from a surgery. Its even scarier your going to get the other surgery done and could lose hearing all together. You will one be in my thoughts for sure. Secondly I hope they get you taken care of and people ANC headphones or earbuds will change your life if your a concert goer, gun shooter, construction, basically anything where you need to hear but also protect your hearing. Tinnitus is a removed. Nothing like EEEEEEEEE to soothe the already tense nerves. Thanks for the info. Don’t put off health issues people it can only get worse!
Edit: kinda a wild metal story after some thought. Thanks for sharing! Wild
Finally going to a doctor to get my tinnitus checked out. Long story short, it’s fucking brain tumors. Remember kids, don’t ignore health shit.
Hey fellow ignorer. Mine was a spinal tumor.
Schwanoma?
Oh no I got to be real special. It was leiomyosarcoma. I was a paramedic for years fell down some stairs once with a patient when I was younger. Had some torn muscles and all that. Went on with life for 30 years with “a sore back” all the time. Oh well. Young and dumb right. One day I kicked a kitchen chair leg passing by. Turns out I couldn’t feel my foot…or the the other one either. Within 6 months I was paralyzed chest down. They chopped it out and I got major radiation treatments that will probably give me cancer before I die. Fun times.
Moral of the story…get your shit checked out.
My huge love to you fellow ignorer of shit. Love you brother/sister/other
New fear unlocked, great
For future reference how does one go from tinnitus to tumors? What’s the testing. I know someone with severe tinnitus they say is mind numbing and makes them feel insane its so bad.
So, I am happy to at least give you my story. I’m an old school metal head. I’ve been to a lot of rock shows. A lot. So when I started having ringing in my right ear I was just kind of like…no shit, don’t color me shocked. It wasn’t extreme, but it was there and it was annoying and it was weird. Almost sometimes like an old timey radio between channels. Anyways, I ignored it forever as part of my own bad life choices. But I have this other annoying thing called a wife, and we are blessed with decent health care so I eventually went to the doc. He looked in there and said he didn’t see shit. But out of abundance of caution he sent me to a fancy ENT. Took a month to get an appointment, and he didn’t see shit either, but out of another abundance of caution he sent me for a noodle MRI. Got a call from his office the next day that I needed to come in as soon as possible. That’s when you know you’re fucked. So anyways, my tinnitus was caused by a tumor wrapped around my auditory nerve. This was caused by a super rare genetic disease called neurofibromas type 2. So basically I am a mutie whose super power is to grow tumors on my cranial nerves. Sweet. There is nothing w cure. Treatment is currently radiation or surgery. I’ve had one surgery which took that tumor but also my hearing on that side. I have another surgery next month for a tumor in my fucking face, which grew off the nerve that runs through there. I can actually feel that fucker with my figer, and if I mess with it my ear goes numb. So long story short kids. 1) wear hearing protection at shows 2) get weird medical shit checked out. If you’d like to learn more about neurofibromatosis please visit www.ctf.org
Holy shit. That’s terrible you lost your hearing on one side from a surgery. Its even scarier your going to get the other surgery done and could lose hearing all together. You will one be in my thoughts for sure. Secondly I hope they get you taken care of and people ANC headphones or earbuds will change your life if your a concert goer, gun shooter, construction, basically anything where you need to hear but also protect your hearing. Tinnitus is a removed. Nothing like EEEEEEEEE to soothe the already tense nerves. Thanks for the info. Don’t put off health issues people it can only get worse!
Edit: kinda a wild metal story after some thought. Thanks for sharing! Wild